As I sit reading to Xander this afternoon, I suddenly felt
like that “Little Engine that could” that I am reading about is me. There I am…reading this Watty Piper classic
to my almost 2 year old son. It’s his
favorite book. And I can understand
why. In the story, the little train (which
could be Marley) stops and cannot go another inch. The little train asks the passenger engine,
the freight engine and the sad, old engine for help. But, they say, “I am a very important engine
indeed. I won’t pull the likes of you!”
or “I am so tired. I must rest my weary
wheels. I can not. I can not.”
Finally, the little train asks a little blue engine to pull them over
the mountain into the city. “I’m not
very big said the little blue engine. I
have never been over the mountain.” “The
very little engine looked up and saw the tears in the dolls’ eyes…..Then she
said, I think can. I think I can. I think I can.” This is how a mom feels when she is determined
to make the impossible happen.
After being turned away for any real help by neurologists,
allergists, and psychiatrists, I knew it was me that would have to pull this
train over the mountain. And pulled I
did….for years. I pulled that little
train with medical interventions, treatment of her damaged GI tract,
detoxification of her little body, nourishing her with special diets and
healthy foods, hyperbaric oxygen treatments and the standard Speech and
Occupational therapy. Yes, I got tired,
but never lost my drive and desire to pull this sweet little train over that
mountain into the city where all the children lived.
Just this past week, my little train made it to the
summit. I had a meeting with Marley’s
IEP team at her elementary school. Her
meeting was comprised of her special education teacher, her mainstream teacher,
her speech therapist for this year, her speech therapist for next year, the
autism integration specialist, the occupational therapist, a resource room
teacher and Marley’s case manager. The meeting
began with introductions.
“Kelly, we would like you to meet our Resource room teacher
and our speech therapist who handles kids in the mainstream classes grades
3-5.” My mind was racing…does this mean
what I think it means? The case manager
when on…”The overwhelming consensus is that Marley be placed in a mainstream
classroom full time for third grade. We
will provide her with resource room help and an IEP, but we believe she is
fully capable of being mainstreamed at this point.” I swear, I almost cried. This was it…the culmination of all Marley’s
hard work at Brain Balance this year. I
knew she was ready…but the fact that they saw it too was wonderful.
Just this morning, Marley’s speech therapist told me “I am
very happy for Marley. Usually, if kids
are placed in a self-contained class, it’s very hard for them to get out.” And I know she is right. Simple inertia takes
over and kids get used to a certain set of rules and expectations and to change
those rules years into their education is difficult. But my goal had always been to get her
mainstreamed using non-pharmaceutical interventions. This year, our saving grace was Brain
Balance. A program designed for kids
with Autism, ADHD, Dyslexia and the like.
It works by strengthening the weaker side of the brain so it can work cohesively
with the stronger side. For over six
months, we did this grueling, labor intensive program. And it delivered. At the end of the program, my little train
made it to the top of the mountain.
Then her speech therapist said to me, “I remember when she
started at this school…she was…” then she stopped. I looked at her and said it. “Severe.”
“Yes”, she said. “Severe.” My memory flashed back to her at age 5 when I
had to carry her into the school while she was kicking and screaming just to go
and sit in a tent all day. Those were
the toughest days. When my little train
was sick and scared and I was fiercely motivated to get her well. I would have done anything. Anything.
Next fall, my little train will be over the mountain and in
the city with all the little boys and girls on the other side of the mountain.
“Puff, puff, chug,
chug, went the Little Blue Engine. ….Up, up, up. Faster and faster and faster and faster the
little engine climbed, until at last they reached the top of the mountain. Down in the valley lay the city. “Hurray, Hurray” cried the funny little clown
and all the dolls and toys. “The good little
boys and girls in the city will be happy because you helped us, kind, Little
Blue Engine.” And the Little Blue Engine
smiled and seemed to say as she puffed steadily down the mountain. “I thought I could. I thought I could. I thought I could. I thought I could. I thought I could. I thought I could.”
*For more information on Marley’s experience with the Brain
Balance program, you can read my blog entry titled “Dream Big” at http://autismroadtorecovery.blogspot.com/2012/03/dream-big.html
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